Founder and Director of Hand in Hand, and wife to Mike
Through my experience I have learnt that brain cancer is unlike any other. There is very little hope. There are limited treatment options, support groups, and minimal financial assistance. Both my husband and his father passed away from brain cancer. Both men diagnosed with GBM stage IV brain cancer. One lived 6 months from diagnosis the other 7 months. I fear for my son – is brain cancer hereditary?
I have dedicated myself to Hand in Hand-Fighting Brain Cancer and to use our combined experience to help others. To be the voice for the thousands of people who are fighting and the thousands that this hideous disease has taken from us. I want to make changes to this underfunded, unrecognised cancer that is killing our loved ones.
In April 2003, my Dad, Johnno Adams was diagnosed with stage 4 Glioblastoma Multiforme (GBM). He underwent surgery the day after his diagnosis. My Dad fought the hard fight, as all these amazing GBM warriors do. We were so lucky to have him on this earth for 10 months after his diagnosis. For those 10 months, I helped care for him, organised appointments, supported my Mum and most importantly, made sure my Dad kept his dignity.
The one thing I wished for throughout the journey was some information and support. And the one thing I thanked God for is that it wasn’t one of my children I was nursing, as I saw a lot of children suffering from this hideous disease.
Being involved in Hand in Hand – Fighting Brain Cancer has given me an opportunity to draw on my experience and emotion. I look forward to being able to walk beside with other people along their journey, offer them support and just to let them know that they are not alone.
I have watched the formation of this charity, from when it was just an idea right through the set-up process, the dreams, the goals being set, to now. My Father-in-law battled brain cancer for just under a year, so I am one of the many people this disease has affected. I look forward to honoring my father-in-law and getting involved in Hand in Hand Fighting Brain cancer, and being instrumental in getting this charity running full steam to fulfill all the goals and dreams that make Hand in Hand Fighting Brain Cancer so special.